ADHD Diagnosis (and Any Diagnosis Wait) Experience Questionnaire If you are currently waiting for an ADHD Assessment or have had an ADHD Assessment, then we’re keen to learn about your experience. Please tell us about your ADHD Diagnosis path and wait Step 1 of 10 10% Which Adult ADHD Assessment Pathways relate to you?(Required)Tick ALL that apply Local NHS ADHD Assessment Pathway Right to Choose NHS ADHD Assessment Pathway Private ADHD Assessment Pathway No ADHD Assessment Pathway Other Pathway: If other please tell us more What ADHD pathway stage are you at?(Required) I've not made any steps towards formal diagnosis I am with the GP (either booked to meet or in discussions with) I am on the waiting list to be screened for an Assessment I am on the waiting list for an Assessment I have had an ADHD Assessment Other Stage: If other please tell us more About your local NHS diagnosisHow long was your local NHS diagnosis wait? If waiting how long do you expect the total wait to be?Please selectUnder 1 month1 to 3 months inclusive4 to 6 months inclusive6 to 9 months inclusive10 to 12 months inclusiveFrom 1 year to nearly 2 yearsFrom 2 years to nearly 3 yearsFrom 3 years to nearly 4 yearsFrom 4 years to nearly 5 yearsFrom 5 years to nearly 6 yearsFrom 6 years to nearly 7 yearsFrom 7 years to nearly 8 yearsFrom 8 years to nearly 9 yearsFrom 9 years to nearly 10 years10 years or moreFollowing diagnosis how long was your local NHS medication wait? If waiting how long do you expect the total wait to be?Following your diagnosis and if you opted for medication.Please selectNot diagnosed with ADHDI did not opt for medicationOrganisation did not provide medication as an optionI was not offered medicationUnder 1 month1 to 3 months inclusive4 to 6 months inclusive6 to 9 months inclusive10 to 12 months inclusiveFrom 1 year to nearly 2 yearsFrom 2 years to nearly 3 yearsFrom 3 years to nearly 4 yearsFrom 4 years to nearly 5 yearsFrom 5 years to nearly 6 yearsFrom 6 years to nearly 7 yearsFrom 7 years to nearly 8 yearsFrom 8 years to nearly 9 yearsFrom 9 years to nearly 10 years10 years or moreDo you agree with this statement? I felt/feel supported by the NHS in the diagnosis process.Strongly disagreeDisagreeNeutralAgreeStrongly agreeDo you agree with this statement? The waiting time for an NHS diagnosis had no significant impact on meStrongly disagreeDisagreeNeutralAgreeStrongly agreeDo you agree with this statement? I am satisfied with the non-medication treatment options offered to me?Strongly disagreeDisagreeNeutralAgreeStrongly agree About your Right to Choose PathwayHow long was your Right to choose diagnosis wait? If waiting how long do you expect the total wait to be?Please selectUnder 1 month1 to 3 months inclusive4 to 6 months inclusive6 to 9 months inclusive10 to 12 months inclusiveFrom 1 year to nearly 2 yearsFrom 2 years to nearly 3 yearsFrom 3 years to nearly 4 yearsFrom 4 years to nearly 5 yearsFrom 5 years to nearly 6 yearsFrom 6 years to nearly 7 yearsFrom 7 years to nearly 8 yearsFrom 8 years to nearly 9 yearsFrom 9 years to nearly 10 years10 years or moreFollowing diagnosis how long was your Right to Choose medication wait? If waiting how long do you expect the total wait to be?Following your diagnosis and if you opted for medication.Please selectNot diagnosed with ADHDI did not opt for medicationOrganisation did not provide medication as an optionI was not offered medicationUnder 1 month1 to 3 months inclusive4 to 6 months inclusive6 to 9 months inclusive10 to 12 months inclusiveFrom 1 year to nearly 2 yearsFrom 2 years to nearly 3 yearsFrom 3 years to nearly 4 yearsFrom 4 years to nearly 5 yearsFrom 5 years to nearly 6 yearsFrom 6 years to nearly 7 yearsFrom 7 years to nearly 8 yearsFrom 8 years to nearly 9 yearsFrom 9 years to nearly 10 years10 years or moreDo you agree with this statement? I felt/feel supported by the right to choose organisation in the diagnosis process.Strongly disagreeDisagreeNeutralAgreeStrongly agreeDo you agree with this statement? I felt/feel supported by my GP in the right to choose process.Strongly disagreeDisagreeNeutralAgreeStrongly agreeDo you agree with this statement? I am satisfied with the non-medication treatment options offered to meStrongly disagreeDisagreeNeutralAgreeStrongly agree About your Private Pathway DiagnosisHow long was your private diagnosis wait? If waiting how long do you expect the total wait to be?Please selectUnder 1 month1 to 3 months inclusive4 to 6 months inclusive6 to 9 months inclusive10 to 12 months inclusiveFrom 1 year to nearly 2 yearsFrom 2 years to nearly 3 yearsFrom 3 years to nearly 4 yearsFrom 4 years to nearly 5 yearsFrom 5 years to nearly 6 yearsFrom 6 years to nearly 7 yearsFrom 7 years to nearly 8 yearsFrom 8 years to nearly 9 yearsFrom 9 years to nearly 10 years10 years or moreFollowing diagnosis how long was your Private medication wait? If waiting how long do you expect the total wait to be?Following your diagnosis and if you opted for medication.Please selectNot diagnosed with ADHDI did not opt for medicationOrganisation did not provide medication as an optionI was not offered medicationUnder 1 month1 to 3 months inclusive4 to 6 months inclusive6 to 9 months inclusive10 to 12 months inclusiveFrom 1 year to nearly 2 yearsFrom 2 years to nearly 3 yearsFrom 3 years to nearly 4 yearsFrom 4 years to nearly 5 yearsFrom 5 years to nearly 6 yearsFrom 6 years to nearly 7 yearsFrom 7 years to nearly 8 yearsFrom 8 years to nearly 9 yearsFrom 9 years to nearly 10 years10 years or moreDo you agree with this statement? I felt/feel supported by the organisation in the diagnosis process.Strongly disagreeDisagreeNeutralAgreeStrongly agreePlease estimate how much you spent on diagnosis and treatment upto nowIf you have an ongoing monthly treatment cost please estimate it.Please estimate your monthly costHave you asked your NHS GP for shared care? I asked and shared care has been accepted I asked and it was refused OR it was made clear during the process it would be refused I have not asked I do not know what shared care is Other What reasons were given for refusal? Shared care: Other. Please tell us more Do you agree with this statement? I am satisfied with the non-medication treatment options offered to me?Strongly disagreeDisagreeNeutralAgreeStrongly agreeAnything else you would like to tell us about your private diagnosis pathway? Have you spoken to your GP about ADHD. Yes No Do you agree with this statement? My GP understands ADHD well.Strongly disagreeDisagreeNeutralAgreeStrongly agreeDo you agree with this statement? My GP supported me in identifying I had ADHD and in getting me an ADHD diagnosis.Strongly disagreeDisagreeNeutralAgreeStrongly agreeDo you agree with this statement? My previous conversations with my GP mean my GP should have considered I had ADHD earlierStrongly disagreeDisagreeNeutralAgreeStrongly agree Please tell us a little about pre-diagnosis mental healthPlease tick ALL that apply. Or skip if none apply. I do not think I had another mental health condition prior to my diagnosis I was diagnosed and treated for depression prior to my ADHD diagnosis I think I had depression (but wasn't diagnosed) prior to my ADHD diagnosis I was diagnosed and treated for anxiety prior to my ADHD diagnosis I think I had anxiety (but wasn't diagnosed) prior to my ADHD diagnosis I was diagnosed and treated for chronic fatigue prior to my ADHD I think I had chronic fatigue (but wasn't diagnosed) prior to my ADHD diagnosis I was diagnosed and treated for another condition prior to my ADHD I think I had another mental health condition prior to my ADHD diagnosis Pre-diagnosis mental health: Other. Please tell us more. Please tell us if you agree with this statement. My prior mental health condition (or conditions) has considerably improved since my ADHD diagnosis.Strongly disagreeDisagreeNeutralAgreeStrongly agree Were you diagnosed with ADHD as a child (in the UK) Yes No About your child diagnosisWhen were you diagnosed? 0 - 4 5 - 9 10 - 14 14 - 18 18+ (with child assessment team) Did you or your parents opt for medication? Yes - and stayed on ever since Yes - with some short gaps Yes - with some long gaps No When you have stopped medication has it been quick and easy to restart? Yes - only when gap were short Yes - always quick and easy to restart No - not quick and easy Were you able to continue medication from childhood to adulthood? Yes - no gap Yes - with a gap while transfered between services Yes - but I had to go to the back of the adult queue No - I have not restarted How long did you have to wait?Please selectUnder 1 month1 to 3 months inclusive4 to 6 months inclusive6 to 9 months inclusive10 to 12 months inclusiveFrom 1 year to nearly 2 yearsFrom 2 years to nearly 3 yearsFrom 3 years to nearly 4 yearsFrom 4 years to nearly 5 yearsFrom 5 years to nearly 6 yearsFrom 6 years to nearly 7 yearsFrom 7 years to nearly 8 yearsFrom 8 years to nearly 9 yearsFrom 9 years to nearly 10 years10 years or moreDo you agree? "The handover from NHS child to adult ADHD services was satisfactory"Strongly disagreeDisagreeNeutralAgreeStrongly agreePlease tell us why you are now seeking an Adult diagnosis? What was the handover process between child and adhult ADHD NHS services like for you? As briefly as you can please tell us your diagnosis story.Have you ever used any of the following to treat, or cope with, your ADHD?Tick ALL that apply Significant excercise (over 12 hours a week) Moderate excersize (over 6 hours a week) Significant caffeine (over 4 cups of tea of coffee per day) To try - ADHD medication from a source other than prescribed directly to you More use than just to try - ADHD medication from a source other than prescribed directly to you Cannabis (in any form) Amphetimes/Speed (bought as a street drug) Cocaine (in any form) Other street drug Meditation / Mindfullness / Yoga or similar Working significantly more hours than your peers Cutting out / Significantly reducing parts of life compared to others (e.g. excersize, family, seeing friends, having hobbies etc.)) Other Other treatment: If other please tell us more Other street drug: If other street drug please tell us more Other treatment: If other please tell us more Please give us an indication of your age 18 to 25 26 to 35 36 to 45 46 to 55 56 to 65 66 to 75 75+ Please tell us all that apply I am in full time education (not University) I am in full time education (University) I am in part time education (Any) I am in full time employment I am in part time employment I am not employed and looking for a job I am not employed and not looking for a job Other If other please tell us more Do you think an ADHD diagnosis will help, or has helped you, in achieving your educational or employment potential?Strongly disagreeDisagreeNeutralAgreeStrongly agree Are you happy to be contacted by the following?Please tick if you are happy to be contacted ADHD UK Members of the media (to share your story publicly) I do not want to be contacted / want my answers to be anonymous Contact DetailsName First Last Email Enter Email Confirm Email Phone
